For Patients and Families While this website is primarily for use by health care professionals and clinical researchers, we welcome your interest in the PRCSG and would like to direct your attention to some useful information provided by trusted organizations. Listed below are some useful links for patients and families of children with rheumatic diseases: ACR Patient Education Materials Information on rheumatic diseases from the American College of Rheumatology. FDA approved products and medication guides Medication Guides are paper handouts that come with many prescription medicines and are specific to particular drugs and drug classes to address specific issues. This information can help avoid serious adverse events. The Arthritis Foundation The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research. Helpful Links from the Arthritis Foundation These links contain helpful information on medical, educational and other resources. We are grateful to all of the patients and their families who have already participated in PRCSG supported clinical trials. Only with the generous donation of their time for clinical research can safe and effective medication become available for children with rheumatic diseases worldwide. If you are interested in participating in clinical trials or would like to learn more about current PRCSG studies, please send us an email. Below are some additional clinical research links: Clinicaltrials.gov ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. It gives you information about a trial's purpose, who may participate, locations, and who to contact for more details. Juvenile Arthritis Research Helpful information from the Arthritis Foundation about current clinical trials and the Childhood Arthritis and Rheumatic Research Alliance (CARRA). PRCSG Clinical Trials This link goes to the trials currently being conducted by PRCSG Investigators, please email us if you would be interested in learning more. Understanding Clinical Trials A useful link for explaining the basics of clinical trials. |
